The most significant part in any care giving affiliation is exactly that: The Partnership.
No quantity of hints, tips or tricks you study and none of the techniques you perform or the research either associate completes can substitute the significance of this part time stressful relationship. When taking care of a loved one with Parkinson’s disease, open communication and common understanding are even more crucial as the only thing that’s definite about this awful disease is the daily insecurity.
Initially, it’s an unceasing and progressive disease. Generally, over time, the symptoms and the obstacles people with Parkinson’s deal with are only going to worsen. Complicating this is the reality that its effects can differ considerably from day to day. Since an assignment that’s effortlessly controllable on a few days may call for substantial assistance at other times, there are always the risks of misunderstandings. For example:
Caregivers can sometimes feel used by being asked to do a task they’ve watched their loved one do alone many times.
Those cared for can feel uncared for when abruptly considered necessary support isn’t presented.
A caregiver may feel underappreciated if their help is refused without warning.
A Parkinson’s “victim” can tend to feel smothered by an overly attentive caregiver insisting on doing things he or she is able to achieve alone.
These are NOT unusual in a number of the Parkinson’s families that are served. At their core is a shortage of communication among the caring partners. Days will be both good and bad, and having a common understanding of what kind of day we’re in for can make clear everyone’s expectations.
However, even that can be made more complicated by an additional effect of the disease. Parkinson’s regularly makes talking very tricky. As with further symptoms, your loved one’s capabilities can change by day so the challenge is clear communication without either misunderstanding or belittling.
On better days, try to come to an understandable agreement on how to communicate fundamental needs so that everybody is able to keep their pride and humor. As the disease gets worse, you may discover that this practice makes sharing much easier.
If you’re having trouble understanding someone with Parkinson’s disease, keep in mind that getting to the first attempt at verbally expressing a whole thought may have been more complicated than you would have ever thought. Try to replicate the pieces that you understood to save your partner the trouble of having to start over from the beginning.
Parkinson’s disease affects too many people, and steals too much of their lives and far too quickly. Those who take care of people affected by it have an amazingly high calling.
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